No one wakes up one day and says “Hey! What can I do
today? I think I will become a Celiac.” Either you are born with the gene, or
you are not. Period—end of story.
The answer may not be that simple because some folks
can have non-Celiac gluten sensitivity/intolerance or a wheat allergy. Each of
these are a little different and should be diagnosed by a trained Celiac
specialist who can supervise the diet. Other than a uniform, itchy rash
known as dermatitis herpetiformis, one of the
tell-tell signs of Celiac disease, the
symptoms of all three—Celiac, non-Celiac gluten sensitivity/intolerance and
wheat allergy—can be very similar.
If
someone is experiencing symptoms, the Celiac specialist may do a genetic test
to determine if you have the gene. If so, she may want to do further testing to
confirm a Celiac diagnosis and the amount of damage to the small intestine
BEFORE advising a gluten free diet. At any rate, the method of diagnosis and
follow up care should be left to Celiac specialists who work with patients on a
one-to-one basis.
The
problem I have with good intentioned Samaritans such as those at one particular
research center, which shall remain nameless at this point, is that they
broadcast general advice that just may not be in the best interest of those
affected with the disease. Until such time a drug is developed to curb the
symptoms of Celiac disease, the current treatment for Celiac disease is a
gluten-free diet. To advise doing a 12 week wheat/gluten stress test to confirm
Celiac disease puts patients at risk for increased intestinal damage, not to
mention making many extremely sick. Who would want to do that just for a
positive confirmation? If someone has been off gluten for any significant
length of time, a wheat/gluten stress test can place someone who is extremely gluten
intolerant at great risk.
This
same group made the statement via Twitter that “ . . . many patients, in particular adults, improve only
partially on a gluten-free-diet, and this diet is difficult to follow, costly
and inconvenient.”